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#597388 - 11/12/07 07:44 PM Fibromyalgia: Real or Imaginary?
Administrator Administrator Offline
Administrator
GRAND Pooh-Bah


Registered: 11/18/01
Posts: 6112
Loc: DrugBuyers.Com
 Quote:
Fibromyalgia: Real or Imaginary?

M. Nergis Alnigenis (Yanmaz), M.D., and Peter Barland, M.D.

Dr. Alnigenis is a Visiting Fellow in the Division of Rheumatology, Montefiore Medical Center, Bronx, N.Y.

Fibromyalgia Syndrome (FMS), is an illness that causes pain, stiffness and tenderness throughout the body. Sufferers complain they have trouble sleeping and tire easily. 80%-90% of FMS victims are women and most are between 30 and 60 years old.

Though FMS may not be well understood, it is far from uncommon. A recent study found that 2% of all North Americans suffer from FMS, 3.4% of women and 0.5% of men.1,2,3,4,5 It is the second most common problem seen by rheumatologists in North America.6,7,8

Some doctors believe that FMS is not a real condition, but, instead, is psychological. What do we actually know about FMS?


The story uis at: http://www.thedoctorwillseeyounow.com/articles/arthritis/fibro_5/

What do you think?
Is it real or psychological?
Why?
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#597495 - 11/13/07 04:22 AM Re: Fibromyalgia: Real or Imaginary? [Re: Administrator]
ROSE22 Offline
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Registered: 01/16/07
Posts: 312
when your spirit is broken, the pain gets worse. but that does not mean it is in our minds.
my pain is in my leg and and back. but once, i feel streesed out,the pain gets alot worse.

i feel lke a punching bag someitmes. it is like the doctors know i hurt and they make it worse, they take their fears out on me.
my opinoin of thi9s disease goes both ways.

when life gets ahrd or i feel alot of stress the pain gets alot worse. but, i do have pain no matter what i do.this morning, i woke up and theres the pain. no stress, no pain triggers, just there all the time. now if i get upset emotionaly, i hurt alot worse.

this diease is a game and i dont want to play anymore~!

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#597502 - 11/13/07 04:46 AM Re: Fibromyalgia: Real or Imaginary? [Re: ROSE22]
ROSE22 Offline
Board Addict


Registered: 01/16/07
Posts: 312
administrator, i just noticed the re-arranging you did with the board and adding the fibro section!

thank you!
this is a great idea you had and i am sure lots of people will contribute to this section!

thank you so much for giving us alittle section of the board!
thank you!

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#597545 - 11/13/07 06:39 AM Re: Fibromyalgia: Real or Imaginary? [Re: ROSE22]
ANNIEGIRL Offline
Enthusiast


Registered: 04/02/03
Posts: 262
Loc: HIGH POINT, NJ
the doc says that stress does play a big factor in fibro.that's why there is alot of meds involved..esp those for musle relaxtion.my musles tense up, there is pain, and stress cause them to tense....eventually you come up with a plan that works...takes a while, but somedays are better than others that's 4 sure....it's raining here, so today is really bad.............
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#601243 - 11/18/07 09:02 AM Re: Fibromyalgia: Real or Imaginary? [Re: Administrator]
JokerOwling Offline
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Registered: 07/14/07
Posts: 1214
Loc: here at the moment
Believing Fibromyalgia is NOT real or is in the patients head
is a PSYCHOLOGICAL DISORDER that requires treatment.
Many doctors think that if they cant figure out whats wrong with you,
then either there is nothing wrong,or,its all in your head.
_________________________
"A magnesium deficiency may be responsible for more diseases than any other nutrient."-Dr.Norman Shealy,Neurosurgeon&Chronic Pain expert.

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#602279 - 11/19/07 07:54 PM Re: Fibromyalgia: Real or Imaginary? [Re: Administrator]
DimSumLover Offline
Stranger


Registered: 06/28/07
Posts: 6
Loc: US - West
I don't know how to get across to the doctors how much pain I'm in. I can tell them on a pain scale, I can pinpoint it on a picture of a human body, I can complain of it for years and they make it seem like it's not "real." It is a very, very frustrating situation to be in.

All I want is to be able to have a decent life, doing all the things that everyone else does with ease.

DimSum

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#603146 - 11/21/07 09:02 AM Re: Fibromyalgia: Real or Imaginary? [Re: DimSumLover]
porini Offline
Stranger


Registered: 02/23/07
Posts: 14
Hi everyone-
I have been reading posts, and now would like to contribute.

I was diagnosed with fibromyalgia about a year ago, after I had many different MRIs and x-rays, etc. Eventually, my GP diagnosed me with fibro, and sent me to a rheumatologist who was an idiot.

I have found some relief, believe it or not, with a yoga class offered at the new gym/rehab center located at my local hospital. I just have to take a hot bath and sometimes a pain pill to loosen up before the class, and only do modified versions of the poses. But I am finding some relief in the horrible pain and stiffness in my upper body.

Hot baths and moderate doses of pain medication, gentle stretching, a careful diet, no alcohol, and lots of sleep (when I can!) help me enormously. Of course, the only pain med I can tolerate without nausea or brain fuzzies is Hydro, and doctors are so weird about it. I could care less about a dependency on it. I only care about quality of life. I have a 4 year old who needs me desperately. When he is older, and more self-sufficient, my life will be different.

I don't take 10 pills a day (maybe 1), and I'm not a drug seeker. I hate the fact that recreational drug users have messed things up for us in chronic pain.

The rain has passed here, and the dampness is out of my house and out of my body, and I feel halfway decent today. Maybe I'll bake a pie!!

xoxo,
susan

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#606128 - 11/28/07 08:42 AM Re: Fibromyalgia: Real or Imaginary? [Re: porini]
bshen Offline
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Registered: 05/31/06
Posts: 54

I think in time the the biological cause of fibromyalgia will be found and doctors from all over the country will call their patients and apologize for being jerks to them while they were suffering.


ROLFL!!!!! Yeah, that's gonna happen.

Just because a cause hasn't been pinned down in the still very mysterious human body, doesn't make it automatically psychological. I work in health care, I don't have fibromyalgia, but I think it would be quite arrogant of me to decide a persons suffering is imaginary.

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#670223 - 03/19/08 12:14 AM Re: Fibromyalgia: Real or Imaginary? [Re: Administrator]
JokerOwling Offline
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Registered: 07/14/07
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Here is a link to an article(excerpt from book) titled:

The Autoimmune Epidemic: Bodies Gone Haywire in a World out of Balance

"...Imagine, if you can: the tingling foot and ankle that turns out to be the beginning of the slow paralysis of multiple sclerosis. Four hundred thousand patients. Excruciating joint pain and inflammation, skin rashes, and never-ending flu-like symptoms that lead to the diagnosis of lupus. One and a half million more. Relentless bouts of vertigo -- the hallmark of Ménière's. Seven out of every one thousand Americans. Severe abdominal pain, bleeding rectal fissures, uncontrollable diarrhea, and chronic intestinal inflammation that define Crohn's disease and inflammatory bowel disease. More than 1 million Americans.More than 2 million patients. Dry mouth so persistent eight glasses of water a day won't soothe the parched throat and tongue and the mysterious swallowing difficulties that are the first signs of Sjögren's. Four million Americans. And, with almost every autoimmune disease, intolerable, life-altering bouts of exhaustion. If fatigue were a sound made manifest by the 23.5 million people with autoimmune disease in America, the roar across this country would be more deafening than that of the return of the seventeen-year locusts."

and "..."The Western Disease": A Rising Epidemic Underrecognized and Underaddressed

Even as autoimmune diseases remain underrecognized and underaddressed, the number of patients afflicted with these illnesses has been steadily growing. Yet few of today's practicing physicians are aware of the escalating tsunami of epidemiological evidence that now concerns top scientists at every major research institute around the world: evidence that autoimmune diseases such as lupus, MS, scleroderma, and many others are on the rise and have been for the past four decades in industrialized countries around the world."

LINK: http://www.alternet.org/healthwellness/80129/?page=entire
_________________________
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#692912 - 05/03/08 10:08 AM Re: Fibromyalgia: Real or Imaginary? [Re: JokerOwling]
Bluefairy Online   happy
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Registered: 06/27/07
Posts: 1027
A lot of older doctors will still say they do not think it is real. Very frustrating.

It seems that unless you have another condition that requires treatment you are unlikely to receive treatment for fibro.
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#693132 - 05/03/08 08:09 PM Re: Fibromyalgia: Real or Imaginary? [Re: bshen]
kserah Offline

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I agree--they will find the biological cause one day. My theory is that perhaps fibromylagia might be caused by the hormones, preservatives and other artificial chemicals put into food.

Some people's bodies may not be able to handle the accumulation over the years. Let's face it--we're altering evolution tremendously by our use of chemicals in the body, and it doesn't have to be during a pregnancy.
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#693152 - 05/03/08 09:16 PM Re: Fibromyalgia: Real or Imaginary? [Re: kserah]
tache Offline
Member


Registered: 07/01/07
Posts: 142
Loc: West Coast
There are a couple of researchers in the states that theorize that FM/CFS and other disorders (RA/Lupus etc.) are caused be chronic mycobacterial infections. It seems as if the most research has been done on RA with some big improvements in health after long term antibiotic therapy. Here is one of the links which discusses mycobacterial infections and chronic illnesses.
http://www.immed.org/index.htm

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#693199 - 05/04/08 02:50 AM Re: Fibromyalgia: Real or Imaginary? [Re: tache]
scruf Offline
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Registered: 03/21/05
Posts: 2565
Loc: pacific nw
 Quote:
big improvements in health after long term antibiotic therapy
this revelation is sure to cause dismay for those using the dubious fibromyalgia claim as a way to feed their opiate habit.

my ex doc is convinced that it does not exist, but turns right around a writes it as a diagnosis when he can't figure out what's really wrong. a cop-out. as I mentioned before, he was thrilled with the advent of lyrica - it gave him a perfect way to derail those he considered seeking drugs by claiming fibromyalgia.

I've asked before and gotten opposing answers. Is there some sort of test that proves the existence or absence of fibromyalgia? how about lupus?

many women at work claim to have fibromyalgia, and a couple of them claim lupus. all of them women. they seem to embrace their maladies lovingly, referring to them as "my lupus" and "my fibromyalgia".

I know this post makes me sound more doubtful and smart-assy than I really am, I just don't understand either disease, or the questions of it's existence in these modern times.

would be interesting to add a poll, real or imaginary?

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#693205 - 05/04/08 03:24 AM Re: Fibromyalgia: Real or Imaginary? [Re: scruf]
nephro Offline
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Registered: 09/04/06
Posts: 8817
Loc: UK, despite the rumours
Doctors don't understand fibromyalgia either, which is one reason why there is no conclusive test for it. All doctors can do is eliminate conditions they can test for, and follow specific guidelines based on questions to arrive at fibromyalgia.

One young woman I know currently takes dosulepin for it, and has been told by her doctor that it will take 6 months to feel any benefit. She hadn't heard of pregabalin. She spent on entire day sat on the floor once with a thick scarf around her neck. She genuinely looked in pain.

It's not the only mystery illness out there. Often bouts of abdominal pain - quite severe - go undiagnosed.

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#693293 - 05/04/08 10:20 AM Re: Fibromyalgia: Real or Imaginary? [Re: scruf]
tache Offline
Member


Registered: 07/01/07
Posts: 142
Loc: West Coast
Scruf, there are problems in diagnosing both Lupus and FM/CFS. There are no definitive blood tests for CFS/FM but there is a ANA test which can be used to help diagnose Lupus. Part of the problem is that you can test negative for ANA's but still have Lupus. A certain % of Lupus patients will always test negative. So for Lupus there is a list of symptoms associated with Lupus and if a patient has 4 of the 11 symptoms they get a Lupus diagnosis.

CFS/FM is more difficult and there is no definitive diagnostic testing. In the link I posted the researchers have developed a test for mycobacteria. Mycobacteria can be notoriously difficult to culture and they have developed some molecular tests to detect the mycobacteria. I think the testing is limited in the number of labs which are able to perform it but there is information on the website about where you can get the testing done.

There are doctors out there that feel that CFS/FM is a legitimate illness but it can be a battle to get the treatment and support you need if you are in fact suffering from it.

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#693302 - 05/04/08 10:48 AM Re: Fibromyalgia: Real or Imaginary? [Re: kserah]
JokerOwling Offline
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Registered: 07/14/07
Posts: 1214
Loc: here at the moment
 Originally Posted By: kserah
My theory is that perhaps fibromylagia might be caused by the hormones, preservatives and other artificial chemicals put into food.

What about the combined effects from mobile/cell phones, wireless internet frequencies,military radars,GPS(Global Positioning Satellites),HAARP,genetically modified foods etc,etc,etc.........

 Originally Posted By: scruf
 Originally Posted By: tache
big improvements in health after long term antibiotic therapy.

this revelation is sure to cause dismay for those using the dubious fibromyalgia claim as a way to feed their opiate habit.

I don't know what its like in the US,but you will be hard pressed to find a Dr in Australia who will prescribe opiates for FM.
_________________________
"A magnesium deficiency may be responsible for more diseases than any other nutrient."-Dr.Norman Shealy,Neurosurgeon&Chronic Pain expert.

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#693312 - 05/04/08 11:11 AM Re: Fibromyalgia: Real or Imaginary? [Re: JokerOwling]
Khilee Offline
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Registered: 03/02/07
Posts: 881
Loc: TN
[quote=JokerOwlingWhat about the combined effects from mobile/cell phones, wireless internet frequencies,military radars,GPS(Global Positioning Satellites),HAARP,genetically modified foods etc,etc,etc.........



I agree,my hubby and I were talking about that a few days ago.
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#693343 - 05/04/08 12:31 PM Re: Fibromyalgia: Real or Imaginary? [Re: JokerOwling]
tache Offline
Member


Registered: 07/01/07
Posts: 142
Loc: West Coast
 Originally Posted By: JokerOwling
I don't know what its like in the US,but you will be hard pressed to find a Dr in Australia who will prescribe opiates for FM.


I am not in the US either and there is little to no chance that a doctor here would prescribe opiates for FM. Unfortunately you would even be hard pressed to find a doctor willing to take you seriously.

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#693357 - 05/04/08 01:06 PM Re: Fibromyalgia: Real or Imaginary? [Re: tache]
Bluefairy Online   happy
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Registered: 06/27/07
Posts: 1027
One point, while their are many doctors who have doubts about Fibro, Lupus is another story altogether.

I have yet to meet a doctor who doubts its existence, it just takes forever to receive a diagnosis. Since it is potentially fatal there is an actual result of not receiving proper treatment as early as possible.
80% of Lupus patients are female, and it has definite links to hormones.

Some patients who have many of the symptoms of Lupus but none of the ones that can be verified by blood test are often listed as fibro diagnosis. Then as the years past and they develop one of the more serious or easily identifiable issues involved with Lupus, their diagnosis is changed.

The only doctor who should be diagnosing fibro is a rheumatologist, they are trained in the condition, as well as being trained in the diseases/conditions that may have the same or similar symptoms, but have more serious consequences.
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#693365 - 05/04/08 01:30 PM Re: Fibromyalgia: Real or Imaginary? [Re: tache]
MisfitToy Offline
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Registered: 02/12/08
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There was a study that found that dextromethorphan (DXM) was effective in threating fibromyalgia pain. From what I have heard, however, is that often times, fibro patients get irate when a doctor tries to treat them with something other than narcotics. I think that's the sort of behavior that raises eyebrows & makes fibromyalgia patients all be lumped into the hypochondriac/drug seeker category. It's unfortunate that a few bad apples spoil the bunch.
I don't doubt the legitimacy of the disease as it pertains to some people. That said, on a personal note, I have an aunt who was finally diagnosed with fibromyalgia after doctors were unable to find anything wrong with her despite her being constantly fatigued and having chronic aches and pains. This woman, for reference, weighs probably close to 300 lbs, but she was not willing to accept that her condition was due to her obesity. Now, she uses her fibro as an excuse NOT to exercise, clean, drive, or even get out of bed some days. She is also one of those types who would throw a fit if someone were to suggest she try anything non-narcotic. So while I think there are legit cases out there, I do think some people use it as a badge or crutch of sorts. I mean, who doesn't feel tired a lot of the time & have various aches and pains? It's part of getting older, as is life.
Just my two cents.

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#693391 - 05/04/08 03:17 PM Re: Fibromyalgia: Real or Imaginary? [Re: MisfitToy]
Bluefairy Online   happy
Pooh-Bah


Registered: 06/27/07
Posts: 1027
"I mean, who doesn't feel tired a lot of the time & have various aches and pains? It's part of getting older, as is life.
Just my two cents. "

While I doubt you meant that with any sort of venom or ill will, it is that type of statement that make the blood boil of people who do have fibro.

There is no comparison between fibro and the normal aches and pains of aging or normal fatigue.
It is very hard to describe to someone a bone deep exhaustion that seem to have no reason to feel.
The frustration of trying to explain to someone the pain that makes your life miserable and prohibits the simplest tasks can be overwhelming.

Two sisters and I were all initially diagnosed with fibro, before it was discovered we did indeed have Lupus, along with severe abdominal adhesions from multiple OB/GYN surgeries. My 2 sisters have a different mother than I, and I can well remember their emotional pain from a mother who just thought they were hypochondriacs. She told them it was just part of life, they had to learn to deal with it.

One sister was hospitalized, and her mother and our father felt she was just trying to get out of taking care of her kids and working. They told the doctor and the nurses on the floor that there was probably nothing really wrong with her, it was all in her head. They believed the parents, sent her for counseling, etc.

Then she almost died from kidney failure.
Big turnaround in their thinking.

Now their mother has the same problems, plus others, and has apologized for her attitude in the past.

Please do not assume that just because you cant see why they are sick, that they are not.

Just because doctors do not know what the problem is either does not mean that there is not one.

After all, 40 years ago it was believed by doctors in the USA that menstrual cramps were a figment of women's imaginations.


Edited by Bluefairy (05/04/08 03:20 PM)
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#693467 - 05/04/08 06:52 PM Re: Fibromyalgia: Real or Imaginary? [Re: Bluefairy]
RubixCubeTO Offline
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Registered: 08/14/07
Posts: 1178
Loc: MEAN PEOPLE SUCK!!
 Originally Posted By: Bluefairy
"I mean, who doesn't feel tired a lot of the time & have various aches and pains? It's part of getting older, as is life.
Just my two cents. "

While I doubt you meant that with any sort of venom or ill will, it is that type of statement that make the blood boil of people who do have fibro.

There is no comparison between fibro and the normal aches and pains of aging or normal fatigue.
It is very hard to describe to someone a bone deep exhaustion that seem to have no reason to feel.
The frustration of trying to explain to someone the pain that makes your life miserable and prohibits the simplest tasks can be overwhelming.

Two sisters and I were all initially diagnosed with fibro, before it was discovered we did indeed have Lupus, along with severe abdominal adhesions from multiple OB/GYN surgeries. My 2 sisters have a different mother than I, and I can well remember their emotional pain from a mother who just thought they were hypochondriacs. She told them it was just part of life, they had to learn to deal with it.

One sister was hospitalized, and her mother and our father felt she was just trying to get out of taking care of her kids and working. They told the doctor and the nurses on the floor that there was probably nothing really wrong with her, it was all in her head. They believed the parents, sent her for counseling, etc.

Then she almost died from kidney failure.
Big turnaround in their thinking.

Now their mother has the same problems, plus others, and has apologized for her attitude in the past.

Please do not assume that just because you cant see why they are sick, that they are not.

Just because doctors do not know what the problem is either does not mean that there is not one.

After all, 40 years ago it was believed by doctors in the USA that menstrual cramps were a figment of women's imaginations.


OMG!!! So very, very well said. Thank you so much - from one who suffers miserably with fibromyalgia and a host of other ills tied into it.

I've read this thread over and over. I've been wanting to post in response to various things I've read here, but declined because I was just too pissed off or hurt (emotionally) to type w/out getting in trouble for flaming. Then I read your post and almost cried. You have said everything - everything I wanted to say.

Thank you and I'm sorry about you and your sisters misfortunes. People can be so cruel.
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#693472 - 05/04/08 07:01 PM Re: Fibromyalgia: Real or Imaginary? [Re: scruf]
mentoramy05 Offline

GRAND Pooh-Bah


Registered: 02/15/06
Posts: 2064
Loc: In your Eyes
 Originally Posted By: scruf
 Quote:
big improvements in health after long term antibiotic therapy
this revelation is sure to cause dismay for those using the dubious fibromyalgia claim as a way to feed their opiate habit.

my ex doc is convinced that it does not exist, but turns right around a writes it as a diagnosis when he can't figure out what's really wrong. a cop-out. as I mentioned before, he was thrilled with the advent of lyrica - it gave him a perfect way to derail those he considered seeking drugs by claiming fibromyalgia.

I've asked before and gotten opposing answers. Is there some sort of test that proves the existence or absence of fibromyalgia? how about lupus?

many women at work claim to have fibromyalgia, and a couple of them claim lupus. all of them women. they seem to embrace their maladies lovingly, referring to them as "my lupus" and "my fibromyalgia".

I know this post makes me sound more doubtful and smart-assy than I really am, I just don't understand either disease, or the questions of it's existence in these modern times.

would be interesting to add a poll, real or imaginary?


My mother in law has Lupus and has also been diagnosed with Fibro. She said there was a test that confirmed the Fibro.

I will get with her and find out the exact test(s) that were done.
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#693489 - 05/04/08 07:31 PM Re: Fibromyalgia: Real or Imaginary? [Re: RubixCubeTO]
tache Offline
Member


Registered: 07/01/07
Posts: 142
Loc: West Coast
I think that it is very hard for those who have not suffered the debilitating fatigue associated with Lupus and CF to really understand how life sapping both the fatigue and pain can be. I feel that because CFS/FM has not really been legitimized by some in the medical community you get the sense that no one is really taking you seriously. My doctors vacillate between Lupus and CFS/FM and it is interesting to see how differently I am treated depending on what the popular diagnosis is at the time, and the doc I am dealing with. I have never had a positive ANA test but was being treated by a doctor who leaned towards Lupus and was willing to treat me as such. I was getting the meds prescribed that I needed and was on a course of prednisone. I know the terrible side effects of prednisone but was willing to risk them since my pain and fatigue was almost non-existent once treatment was started. Unfortunately I have since moved and am dealing with a doctor who wants a positive ANA test before they are willing to continue prescribing the meds the other rheumatologist had me on. So I am back to regular ANA tests and a great deal of frustration. There is a doctor some distance from me who will treat patients with the long term antibiotic therapy and I have been considering going to him. I do know someone else on the protocol and to be honest was just waiting to see how they were doing before taking the plunge LOL.
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#693649 - 05/05/08 09:38 AM Re: Fibromyalgia: Real or Imaginary? [Re: Bluefairy]
MisfitToy Offline
Veteran


Registered: 02/12/08
Posts: 643
Loc: my own sweet time
 Originally Posted By: Bluefairy
"I mean, who doesn't feel tired a lot of the time & have various aches and pains? It's part of getting older, as is life.
Just my two cents. "

While I doubt you meant that with any sort of venom or ill will, it is that type of statement that make the blood boil of people who do have fibro.

There is no comparison between fibro and the normal aches and pains of aging or normal fatigue.
It is very hard to describe to someone a bone deep exhaustion that seem to have no reason to feel.
The frustration of trying to explain to someone the pain that makes your life miserable and prohibits the simplest tasks can be overwhelming.

Two sisters and I were all initially diagnosed with fibro, before it was discovered we did indeed have Lupus, along with severe abdominal adhesions from multiple OB/GYN surgeries. My 2 sisters have a different mother than I, and I can well remember their emotional pain from a mother who just thought they were hypochondriacs. She told them it was just part of life, they had to learn to deal with it.

One sister was hospitalized, and her mother and our father felt she was just trying to get out of taking care of her kids and working. They told the doctor and the nurses on the floor that there was probably nothing really wrong with her, it was all in her head. They believed the parents, sent her for counseling, etc.

Then she almost died from kidney failure.
Big turnaround in their thinking.

Now their mother has the same problems, plus others, and has apologized for her attitude in the past.

Please do not assume that just because you cant see why they are sick, that they are not.

Just because doctors do not know what the problem is either does not mean that there is not one.

After all, 40 years ago it was believed by doctors in the USA that menstrual cramps were a figment of women's imaginations.


Please note, in no way, shape or form was I trying to trivialize true sufferers of fibromyalgia. That is why I was quick to say, 'I don't doubt the legitimacy of the disease as it pertains to some people.' I just believe that doctors are hesitant to prescribe opiates for a medical condition that has no true way of diagnosing it, and the added fact that most patients with fibro are not open to receiving non-narcotic treatments is an added red flag.

I am sorry you're in so much pain & truly wish you the best. My mother has lupus and underwent aprox. 10 years of tests before she finally got a diagnoses. Autoimmune illnesses are some of the trickiest diseases to diagnose and treat. I wish you the best in your journey and am truly sorry my post offended you.

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#693653 - 05/05/08 09:45 AM Re: Fibromyalgia: Real or Imaginary? [Re: MisfitToy]
JokerOwling Offline
Pooh-Bah


Registered: 07/14/07
Posts: 1214
Loc: here at the moment
 Originally Posted By: Bluefairy
The only doctor who should be diagnosing fibro is a rheumatologist

I haven't heard of any other type of dr who does diagnose FM.Things must be different in the US.
Also,for all the people who think its only(or the majority are) women who get FM,my rheumatologist says that he finds he is now diagnosing approx. 2/3 women and 1/3 men.He also says that is changing rapidly and some months its the other way around.

 Originally Posted By: MisfitToy
Now, she uses her fibro as an excuse NOT to exercise, clean, drive, or even get out of bed some days.

Is this really different to any other disease or syndrome.
I know more people that use disorder'X' as an excuse than I do FM.
_________________________
"A magnesium deficiency may be responsible for more diseases than any other nutrient."-Dr.Norman Shealy,Neurosurgeon&Chronic Pain expert.

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#694051 - 05/06/08 05:16 AM Re: Fibromyalgia: Real or Imaginary? [Re: JokerOwling]
MisfitToy Offline
Veteran


Registered: 02/12/08
Posts: 643
Loc: my own sweet time
^I agree. I was just pointing out that, in the case of my aunt, she has latched onto her fibro as a "way out" of the lifestyle changes she desperately needs.
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#694190 - 05/06/08 10:37 AM Re: Fibromyalgia: Real or Imaginary? [Re: MisfitToy]
JokerOwling Offline
Pooh-Bah


Registered: 07/14/07
Posts: 1214
Loc: here at the moment
Sorry if I sounded like I was having a go at you at all MisfitToy.I was just making a general statement.
Some people have genuine reasons for being unable to function,but it is annoying when anyone uses their problems as an excuse before even trying to function properly.
_________________________
"A magnesium deficiency may be responsible for more diseases than any other nutrient."-Dr.Norman Shealy,Neurosurgeon&Chronic Pain expert.

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#694212 - 05/06/08 11:21 AM Re: Fibromyalgia: Real or Imaginary? [Re: JokerOwling]
prettyluv Offline
Newbie


Registered: 03/27/08
Posts: 43
What people do not understand is the more you don't do things, the worse the pain will be. I have fibro and was diagnosed about 4 years ago.

I'm on a strict diet and exercise program, stretching and Yoga, along with some Thera-Band resistance stretches. Also massage therapy helps.

Is fibro real? Yep it is. But if you talked to my MIL she would say no and it's all in my head. I told her at one point I wish she would feel my pain just once!!

Great topic and Admin, thanks for putting this out there.

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#694230 - 05/06/08 11:42 AM Re: Fibromyalgia: Real or Imaginary? [Re: prettyluv]
Khilee Offline
Threadhead


Registered: 03/02/07
Posts: 881
Loc: TN
[quote=prettyluv][b]What people do not understand is the more you don't do things, the worse the pain will be.


prettyluv, I agree. I Have RA, but my rheumy thinks I may have Fibro along with it, which by the way I have read is very similar to RA pain. I can't do very much because of other medical problems, but I refuse to just lie around and let my pain take over my life.
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